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They shouldn’t call them headaches they should call them seizures.

Mine were chronic for 22 years. Verapamil 480mg per day stopped them after about 6 weeks. Haven’t had a full blown attack for 25 years.

Sumatriptan has worked for me. The pills will work in about 20 minutes on an empty stomach or faster if you take it as soon as you feel it comming on.

Dr. Raskin was the fourth Neurologist I saw. In my 30’s I had given up after 20 years of debilitating migraines. The most important information he gave me was that I had an overstimulated spark somewhere in my brain and that I was not crazy. To this day that meant the world to me. 🙏🏻

My last 3-5 days!!!

This just started with me. Had to go to emergence Room .. See my Dc. in a week . I want to go to a Specialist this really put the scare on , never heard of it the med VA gave me has also a lot of questions Sumatriptan the ingredients would bring Frankenstein back from the Dead. So far I`ve learned more on line then any were else , did not know why there called Cluster then I fine out THEY could go over a period of time. like cycles WT? Thank GOD I do have Faith in a Living Christ Jesus . and I will seek Him about it.

I have started my cycle 15th April we are now a week in may I am having 2 to 3 to 4 a day even in the night they wake me up it is the worst ever the doctors have gave me zolmitriptan and verapamil the verapamil is just for two weeks two a day since I started the verapamil my headaches are worse stronger pain and I’m having more then 3 can anyone help me please I am 34 and this is the 4th time I have exspieranced this and this cycle is the worse one I have ever had 😢

Did excersice triggered those stroke like symptoms? And are you able to work out now? What did you tell the insurance? I am fightinf just to get the echo considering just going to er during the stoke like attacks

This scares me that my migraines are getting worse. Yesterday was the worse migraine I’ve had in awhile. They upgraded to vestibular migraines 3 years ago with dizziness, blurry vision for days and ringing ears and now to allodynia.

Can you guys do full interview cluster headeache 2024 and beyond Each year should be urgent at least 1 big video interviewing neurologist researches about thus terrible condition How much ppl in usa has cluster?? 20 to 30k people or is to much?? ESTIMATED 100k AROUND THE WORLD?? PLEASE DO ANOTHER 30 MINUTES 1 HOUR INTERVIEW THE AMAZING DOC THAT DID THE INTERVIEW 5 YEARS AGO CAN YOU GUYS DO?? MARCH IS THE INTERNATIONAL DAY FOR CLUSTER AWARENES!! DO EPISODIES ABOUT YOU GUYS CAN HELP SO MUCH PPL AROUND THE WORLD DIVULGATION ABOUT THESE DONT FORGET THIS TERRIBLE DISSEASE THIS DOCTOR WAS AMAZING THAT DID THE VIDEO OF CLUSTER 5 YEARS AGO CAN YOU GUYS DO NEW INTERVIEW WITH HE?? ALL NEW ADVANCES THE CAUSE OF CLUSTER THE NEW TREATMENTS THE BRAIN BLOCKS OCIPTAL NERVE ESPHENOPALSTIN BLOCKS THE SUCESS RATE ALL THIS SURGERIES ALL THAT THE NEW INJECTIONS MELATONIN STUDIES ALL THAT!!

Dr Finkel has been amazing for me! ❤

Here we are 5 years later and no advancement on how to treat this hellish pain

I used to have migraines and allodynia. However, now I just have rsndom episodes of allodynia, and they are much more severe. Never in the same spot as before. Can you link allodynia to anything else aside from the migraines?

In a cluster right now. Started mine around age 30, only smoked lightly in my early 20’s, but also asthmatic. I take imitrex pills at onset. My cycles usually last 2-3 weeks every other year around spring or fall. Glad to see possible new treatments but this disease SUCKS. It is hard to describe how exhausting it is and how irritable it makes me.

Can we please just talk about how isolating and lonely these are? Like no one in my family or friends circle understand. I always get the snarky " oh amother headache". I feel like I'm missing out on so much and wish i just had someone in my life that cared enough to educate them selves and be there for me I didn't choose this :(

It's 5 years later...has something improved yet in the way of treating CH?

Omg it’s so relieving to find people that can understand what I’m going through. These attacks are awful just awful. It’s ruining my life.

I think this is what I have! I get this a couple times a year now. My skin hurts. It's different from a sunburn but that's probably the easiest way to describe it. I feel it is deeper. But not muscular deep.

I've had chronic clusters for around 5-6 years so i understand the desperation people feel. Mine have finally started to ease into a more episodic pattern but they still kick my ass on a semi regular basis. For those suffering, stay strong and remember no matter how bad they are or how often they come, they WILL end and you will be able to rest, appreciate the down time and don't let them beat you.

I am in my first cycle. I have been microdosing CBD (under the tongue) for about two weeks (<100 mg every day) and haven't had any serious attacks in the past couple of days. I don't know if my cycle is ending (it started about 2 months ago) or if the CBD is doing something. I am afraid of risking and stopping the CBD to see which one is the case but since CBD is not so harmful, especially in low doses, I think it is really worth trying. I know vaping is very bad for lunges but I vape CBD oil (55%) in emergency cases (when I feel the pressure build up in the back of my eye) and I think it works since CBD can enter the blood directly from lunges. I have a feeling that one needs to take a certain dose (100-200 mg) every day for at least one week to see the effect. So don't stop if you didn't see an immediate effect. I really hope CBD is a solution with long-lasting effect for me and for everyone.

After experiencing these for 40 years ive come to the conclusion hormones and neurotransmitters are involved. Serotonin is a factor and maybe testosterone or estrogen. Psilocybin stopped mine for 3 years which is the longest period of remission I've enjoyed. If you suffer from these Don't Smoke, No Alcohol, take vitamin D3, C Magnesium, and B12, B.complex, Stay Hydrated at all times.

Promo>SM 🤤

Well-explained. Thank you. I have allodynia w chronic migraine. Was up to 20 days of headache a month. I started seeing great functional neurologist and did not have a single migraine attack for 6 weeks. No meds. Then had weird accident and got knocked over by a dog Thursday and hit head…got migraine attack that same day. Allodynia showed up the following day. I’m lying in bed feeling like I’m on fire right now.

I was cured off my herpes virus with the help of Dr Omole from RUclips with his herbal mixture...

they need a better name

Randomly had this happen to me today, no headaches or anything touched the side of my head and felt a sharp pain, was wearing headphones for several hours before guessing it’s that.

Dr. Raskin is an absolute legend. I’m very grateful to have worked for and know him. His legacy is being carried out in modern neurological teaching and treatments.

I don’t smoke and am not a man. Mine disappeared for a decade and last for 6 weeks during season change from March to May. Mine came back after 6 months in of Trigeminal Neuralgia and fungus ear infection and ocular rosacea.The cluster headache this time is badly debilitating even though everything else is hellish too. It makes a person wonder what the secret is to complete relief. You can’t concentrate this away unfortunately.

Try Oxygen! Amazon has the 5liter cans of 95% Boost Oxygen for about $10.00 US per can. As soon as the first signs of the CH occur huff on the can like your life depends on it. My CH is gone by the time the can is empty. Please try this my fellow sufferers… it has saved my life…

Isn't it the VAGUS NERVE

Dues anyone YELL!! Sometimes o do. I get mad.bou5 4-8 times haven't had a break fur 2years. I hate them. No Dr's wanna help

so its not a headache its an attack on the nerve system

Over use of brain.

didint say vestibular migraine.

I suffer from them I find that fresh cold air seems to calm the pain but the pain is awful and very very painful

Its definitely not a migraine or a headache, lets call it what it is, ACUTE FACIAL NERVE ATTACKS. This guy gets it and Im grateful. This past weekend I had 2 incredible attacks that lasted over 4 hours and took me beyond any rational definition of pain. The pulses from beyond. Living nightmare level. If you are suffering from this, I recommend counting, over and over. Dont let the pain hijack your inner voice, just count. Dont do it alone, get sumpatriptan nasal spray, emgality, steroids, oxygen. GET HELP. Yes psychedelics work for many people, but not for everyone. Implanting stuff in your brain is an intense prospect. You will be stronger because of these. Grateful for peace. We are in this together.

I feel so seen. It feels like people always told me I'm just being lazy

Well.....here I am 4 years later. Hopefully soon. God Bless 🙌

I had an incapacitating headache like it pain behind eyeball but it in both. I take topamax. It doesn't happen often unless I drink caffeine which blocks the drug. I was left screaming. Imigran wouldn't work. I'd neuro symtoms I'm just glad the pain has stopped I also had dizziness Jerking and fits so uncertain what I suffered from. I never got it again.

I'm 36 years old been battling these headaches since around 16 or 17.... have gotten them every year since young, and it'll last for about 2 or 3 months... been doing lots of research and came across eating raw ginger on a daily basis.. so far I've been 1 year free from an attack.. for those suffering try some ginger... hope it works for you.

Give up anything with gluten and sugar in. Also get physio for neck to reduce pressure on Trigeminal nerve which is activated during CF attack. It affects jaw, eyes and head. I speak from experience. I rarely get CF now following this protocol! Hope this helps someone?

Nothing some opioid cannot get rid of 😊

I had clusters mulitple times a day for 8 years. Then I was told it was a damaged neck muscle and my physio could induce an attack by pressing on the muscle. He told me my muscle went into spasm and needed oxygen, which is why oxygen helps apparently, although I've never tried it. Then one day I was in a yoga class and had brought a freind for his first class. I felt an attack come on and decided to try to go through it so I didn't leave my freind. We went into headstand and my headache dissapeared. Now I just put a pillow next to my bed and hang off the bed for a few minutes as soon as i feel an attack coming in and I havent had a full on headache since. They dissappear quickly and rarely happen at all. I went on Facebook groups to tell people this but was attacked constantly as a quack so I gave up. I'm not saying this will work for everyone but it works for me and is definitely worth a try. Good luck🤞

I used to get woken 3 times in an 8 hour sleep cycle & several attacks during the day, for those of u who aren't getting the correct treatment (sumitriptan injection pens) of the doc, my only relieve was to put my eye as close to a gas fire or open oven,even if your hair singes at least it cuts the pain in half to 50%.tx me back,I'll tell u all I know ,

I have a cluster headache the pain is unbearable and hits in waves I feel for my fellow cluster heads

Another cycles another nightmares. Is it just me or y'all start watching videos about cluster headache again when the cycles start? Horrible but life must go on. Must survive for next 30 day with this monster

I hate my head .....hatehatehate... Female had um e eryday. 5 to 8 a day ....

Expanding and Clarifying the Patient’s⚕️ Story. As you elicit the patient’s story, you must diligently clarify the attributes of each symptom, including context, associations, and chronology⏳🕝⏲️⌚. For pain⚡ and many other symptoms, understanding these essential characteristics, summarized as the seven7️⃣ attributes of a symptom, is critical. To pursue the seven 7️⃣attributes, two mnemonics may help: ■ OLD CARTS, or Onset⏰📆,(Sudden, Gradual, Thunderclap 🌩️) Location🗺️🌍📌, Duration,⏳⏲️🕝⌚📆 Character,(🗡️ Sharp, Dull, Throbbing 💥Aggravating/ Alleviating Factors, Radiation,(Pain Radiating from Left Arm 💪 To Left Shoulder➡️ 🕵️ and Left Chest❤️ as in a Heart♥️ Attack (=Myocardial Infarction ♥️🩺) and Timing, ⏳⏲️🕝⌚📆or ■ OPQRST, or Onset, Palliating/Provoking Factors, Quality, Radiation, Site, and Timing The Seven 7️⃣Attributes of a Symptom 1. Location.🤕 Where is it? Does it radiate? 2. Quality. What is it like? 3. Quantity or severity. How bad is it? (For pain⚡, ask for a rating on a scale📏 of 1 1️⃣to 101️⃣0️⃣.) 4. Timing. When⏳⏲️⏰📆 did (does) it start? How long ⏳⏲️🕝📆does it last? How often🕝🔄 does it come? 5. Onset (setting in which symptom occurs). Include environmental factors, personal activities,🚶(How many Flights🏃 of Stairs🏂 or Blocks Walked🚶 Before Chest Pain⚡ or Shortness of Breath🌬️ occurs) emotional reactions(Pain has a Affective Component Emotional😭😩) , or other circumstances that may have contributed to the illness. 6. Remitting or exacerbating factors. Is there anything that makes it better ⬆️or worse⬇️? 7. Associated manifestations. Have you noticed anything else that accompanies it? Whenever possible, repeat🎧🎶🔊📢 back🔙 the patient’s words™️ and expressions as the history unfolds, to affirm the patient’s experience as you clarify what he or she means. Although using clinical terminology is tempting, these terms can leave patients confused and frustrated. Be aware of how easily jargon like “take a history”📝 and “work you up” can creep into your discussions. Choose plain language for reflecting🔊📢🎶🎧 back🔙 the patient’s story, for example, “You said there was ‘a heavy weight’🐘🏋️ on your chest. Can you tell me more about that?”

I have this and headache doesn’t do justice.

I had a PFO closure surgery several years ago and my life-long monthly migraines stopped immediately. I had migraines once or twice a month for about 30 years, starting as a young child. They eventually started exhibiting as complex migraines with stroke-like symptoms (but no painful headache) which led me the ER twice. Until my 2nd time in the hospital though, it was unknown what was causing the stroke symptoms. They tested for PFO using a "bubble test," where they watch your heart on an EKG while agitated (bubbly) saline is injected through an IV. The doctors did not immediately correlate the PFO to my migraines, but the cardiologist casually brought it up a month later in a follow up appointment after learning that the neurologist thought the symptoms were from a complex migraine. He was very cautious to point out that PFO closure is not a proven solution for migraines, but that data showed there to be a correlation with a reduction or elimination of migraines in people that had the surgery. We determined the risk was worth the possible reward, made sure my insurance would cover it, and the rest is history. Fascinating stuff.